Welcome friends and family to my blog about two of my most favorite people in the world, Marley and Charlie. It is here that I plan on journaling, adding photos, and sharing my adventures in motherhood. Marley, my first born, just turned three. She has a zest for life and is a little firecracker, exuding personality, spunk and charm. She is very excited to be a big sister to her new little brother Charlie. Charlie is my new addition. He came into this world fast and furious, with the most perfect birth. You can view some of that here.
We had Charlie home for two days until we went for our routine 2 day exam with my midwife and mentioned his respiration had been a little quick. She sent us on to the pediatrician whom we had seen the day before, and he sent us on to the NICU at the hospital. By that evening our world had been turned upside down when it was discovered that Charlie had a heart condition, an interrupted aortic arch , and he was being life-flighted to Children's Mercy Hospital in Kansas City barely clinging onto life. Long story, shortened, they brought Charlie backed from the brink of death, and he underwent open heart surgery on New Year's Eve, when he was just two weeks old. While there he underwent some chromosomal testing and it was discovered that Charlie has DiGeorge Syndrome. That means the road that lies ahead for us is uncertain, with DiGeorge Syndrome the severity varies so greatly, ranging from not really even knowing you have it to more serious complications like greater risk for infections due to a low immune system as well as a great range in cognitive abilities. We have no choice but to play the waiting game to see how Charlie will be affected by DiGeorge, but regardless I couldn't love him more if I tried and we are not afraid what the future holds for this little guy, he has already touched the lives of many and left a great mark on the world and he is only 4 weeks old. I know he will do great things.
As of now we are all back home and doing well. We are adjusting to our new lives with two children. Most days are an adventure, but each passing day gets a little easier. And with lots of support from friends and family we are doing just peachy.